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Zhen Zhao
Smeralda Skenderaj
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Project:
Newborn Screening
Categories:
Observational
Patient-centeredness
3 Publications
found
Psychological impact of comprehensive tumor genomic profiling results for advanced cancer patients.
b
Patient education and counseling
July 1, 2022
p
Newborn Screening
c
Observational
Patient-centeredness
Diagnostic experiences of Duchenne families and their preferences for newborn screening: A mixed-methods study.
b
American journal of medical genetics. Part C, Seminars in medical genetics
June 1, 2022
p
Newborn Screening
c
Observational
Patient-centeredness
“”: perspectives of parents and healthcare professionals involved in a pilot newborn screening program for spinal muscular atrophy.
b
EClinicalMedicine
March 1, 2021
p
Newborn Screening
c
Observational
Patient-centeredness
